@article{oai:mie-u.repo.nii.ac.jp:00004631,
 author = {三浦, 由佳 and Miura, Yuka and 丹羽, 綾香 and Niwa, Ayaka and 信藤, 由衣 and Nobuto, Yui and 与谷, 杏美 and Yotani, Ami and 種田, ゆかり and Taneda, Yukari and 久田, 雅紀子 and Hisada, Akiko and 田村, 麻子 and Tamura, Asako and 成田, 有吾 and Narita, Yugo},
 issue = {1},
 journal = {三重看護学誌},
 month = {Mar},
 note = {application/pdf, SEIQoL-DW尺度日本語版の開発以降，神経難病患者やその家族を対象にした報告は散見されるものの，回復が期待される疾患での調査は少なく，急性散在性脳脊髄炎（acute disseminated encephalomyelitis：以下ADEM）での報告は見られなかった．今回，ADEM患者（70歳代男性）と配偶者（70歳代女性）に対するSEIQoL-DWを用いた半構成的面接法，日本版STAIからの20項目のアンケートおよび患者しびれ感へのVASスケール評価を併用して，退院前後の療養者（患者および家族）の不安とQOLの変化を追うことができた．
　SEIQoL-DWインデックスでは，患者は退院前88.8，退院後80.0であり，妻は退院前91.2，退院後74.2であった．患者の足のしびれ感はVASスケールで，退院前42，退院後80であった．STAI項目では，患者と妻に差異があり，妻の不安・不満が示唆された．退院前後でSEIQoL-DW等を行うことで，患者および家族が抱える不安内容を把握することができた．また，退院前後でレスポンスシフトが生じた可能性があった．今後，良性疾患で退院前には比較的高いQOLが示唆されたとしても，退院後を含めた継続的な支援が包括的な患者や家族のQOL向上に必要と考えられた．, Since launching SEIQoL-DW Japanese version, there were several reports of its QOL on patients and families with severe neurodegenerative disorders.  But we could find few reports on self-limiting disorders and especially no case-report with acute disseminated encephalomyelitis （ADEM）.  Recently, we had a chance to support preparing the discharge of the ADEM patient in his 70s with relatively good outcome.  We checked the patients and his wifes （in her 70s） QOL by SEIQoL-DW and apprehensions by 20 items from STAI Japanese version, along with his numbness by visual analogue scale （VAS） before and after the discharge.  
　The indices of SEIQoL-DW were patients: 88.8 （before） and 80.0 （after the discharge）, wifes 91.2 （before） and 74.2 （after the discharge）.  The numbness by VAS was worsened as 42 （before） and 80 （after the discharge）.  STAIs items showed some discrepancies between the patient and his wife, which suggested worse apprehensions.  There seemed to be the response shift on SEIQoL-DW between before and after the discharge.  Continuous and comprehensive support seemed to be necessary for better QOL of patients and families with self-limiting neurological diseases, even though they showed relatively good QOL indices before the discharge.},
 pages = {97--103},
 title = {急性散在性脳脊髄炎（acutedisseminatedencephalomyelitis:ADEM）患者と配偶者の退院前後のQOLと不安},
 volume = {14},
 year = {2012}
}